The RCMI CC Data Coordinating Center is among 11 institutions which will work with Harvard Medical School, as the lead institution, to develop a national network to support more efficient patient-centered research. The collaboration with Harvard Medical Schoolincludes:
- Beth Israel Deaconess Hospital
- Boston Children’s Hospital
- Boston Medical Center/Boston HealthNet Community Health Centers
- Cincinnati Children’s Hospital
- Columbia University Medical Center and New York Presbyterian Hospital
- Morehouse School of Medicine
- Partners Healthcare
- The RCMI Coordinating Center Data Coordinating Center at Jackson State
- University of Texas Science Center at Houston
- University of Mississippi Medical Center
- Wake Forest Baptist Health
Leveraging an informatics infrastructure which includes the i2b2 and SHRINE systems at the Center for Biomedical Informatics (CBMI) at Harvard Medical School, the research institutions will develop one of the 11 Clinical Data Research Networks (CDRN) within PCORnet, the National Patient-Centered Clinical Research Network. Principal Investigator, Kenneth Mandl, M.D., stated in the abstract that the network will cover more
than 8 million patients and enable clinician and patient participation in research. Innovative “apps” that will capacitate point-of-care functions such as consent, enrollment, randomization and patient-reported outcomes is central to the program and will ensure it
impact on improving patient healthcare.
The RCMI CC DCC will provide technical assistance to the Morehouse School of Medicine/Grady Hospital and the University of Mississippi Medical Center in
implementing their i2b2 (Informatics for Integrating Biology and the Bedside) systems and SHRINE (Shared Health Research Information Network) systems.
Omar Aldaoud, DCC Associate Director and Director of Information Security and Technology Integration, will serve as DCC project lead. “We are pleased to be a part of this consortium of stellar research institutions and look forward to bringing the technological expertise available through RCMI CC to the table.”
This effort has been made possible by the Patient Affordable Care Act, Dr. Mandl stated, “This is a pivotal moment in healthcare, made possible by the Patient Affordable Care Act, allowing us to cross institutional boundaries and join together as patients, clinicians, advocates, leaders, and researchers to conceive and advance new models of clinical research”.
The Patient-Centered Outcomes Research Institute (PCORI) awarded more than $90 million to support 29 clinical research data networks that will form a national Patient-Centered Clinical Research Network, known as PCORnet. PCORnet will join together networks to provide access to a large amount of diverse, nationally representative health information that can support a range of study designs, The expected outcome includes a reduction in start-up of new studies and producing outcomes that specifically address areas of interest to the patient and their caregivers.