Our Community Researcher Toolkit is designed to help our stakeholders- clinicians, faculty researchers, community-based organizations and community advocates expand their understanding of Community-Partnered Research as well as forge mutually beneficial research endeavors to address the problems impacting under-resourced communities supported by the RCMI Network Institutions.

FAQs


What is community-partnered participatory research (CPPR)?

In CPPR, partners are valued equally and collaborate jointly in research development, implementation and dissemination. Jones L, Wells K. Strategies for academic and clinician engagement in community-participatory partnered research. JAMA. 2007;297(4):407.

Why should I pursue community-partnered research?

Community input and participation in research ensures the likelihood that research will generate findings that are relevant to issues that are of the greatest importance in those communities and the results will be translated into real-world practices that the communities can understand and implement to improve their own health.

What steps are involved in CPPR?

  1. Health concerns identified: There is full participation of community in indentifying health problems to be addressed and investigators/researchers work to increase their participation in the research process.
  2. Study design: The community representatives are highly engaged in study design and proposal submission. This ensures increased acceptability of the study approach. And differs from traditional research model, where the design is based entirely on scientific details.
  3. Funding: The proposal includes funds for community participation and outreach instead of only including allocations for research expenses.
  4. Participant recruitment and retention: The Community representatives provide guidance regarding recruitment and retention strategies which eliminates the “best guess” approach to draw the community’s involvement in traditional research.
  5. Methodology and Data Collection: Measurement tools are developed with community input to demonstrate a willingness to achieve increased sensitivity to ethical issues while maintaining reliability and validity.
  6. Intervention design and implementation: To assure greater cultural and social relevance in selected populations, community members assist in intervention development. This approach increases the likelihood of acceptance and change on the part of the community.
  7. Data analysis and dissemination of findings: To assure greater sensitivity to cultural and social considerations and create an environment of acceptance for the findings, the data is interpreted, translated and disseminated with the assistance of community members.

Source: University of California, San Francisco: http://accelerate.ucsf.edu/research/community-faq#basics

What type of studies benefit from CPPR?

Epidemiological or descriptive studies, evidence-based practice, and evaluation or practice-based evidence are Community-partnered participatory research studies? These studies address the particular health characteristics, needs or disparities that exist; evaluate programs or treatments that are applied to various community settings and how they need to be changed for more effectiveness; and, whether the programs are meeting their goals and effectively addressing patient/community needs and issues.

What are some tools to help get me started with my CPPR?

- Creating and Maintaining Partnerships – provides guidance for creating a partnership among different organizations to address a common goal

- Assessing Community Needs and Resources – conducting a community assessment

- Writing a Grant Application for Funding – work to prepare a successful grant proposal

- Developing an Intervention – develop components of a community intervention